Personal Spina Bifida Stories.
Inspiring real life stories about what God is doing in and through the lives of people effected by Spina Bifida. iamviable.org
You ever have one of those "why me?" moments? I spent a good deal of my childhood and high school years having those moments. "Why was I born this way?" "Why cant I find someone to look past my disability and see me for who I really am and love me how I am?" "Why am I even alive?", you name it I thought it. Despite my disability I was lucky enough to be born with parents who loved me and made sure I was included and not excluded from things and made sure I knew just how loved I was and how much my life mattered. It wasn't until the age of 19 that I truly discovered that I ...[Read more]
My name is Bryan, I was born with spina bifida, a birth defect that stops your spine from connecting to your pelvis. I am in a wheelchair and will be for my whole life. At the begining of January I had to have metal rods put into my back because I developed a severe case of scoliosis. Those rods made my life a living hell. I had to depend on people to help me with everything. Before the rods were put in my back I was very independent. I could do almost everything myself except for getting food or something to drink. After the rods were put in I had to depend on people to help ...[Read more]
My brother and I were conceived because of a crime, but we were born because our birthmother loved us and saw that we were precious and special. My mom and dad were told about all the things I would not be able to do, but they never told me. I didn't crawl as soon as my brother did, or pull to stand, or walk, or run or jump or skip, but the important thing is that I can do all those things. Doctors don't know everything, all they can do is guess at the future, But God knows all things, He knew about me, He knew I would be able to do everything the doctors said were impossible. With God, ...[Read more]
I was born with the most severe form of spina bifida, myelomeningocele. My parents found out at 32 weeks pregnant. I also have hydrocephalus. I had my first surgery at 1 day old, then another surgery for shunt placement at 3 days old. I had a third surgery at only 4 months old to remove a cyst from my brain. I am never sad. I am always smiling. I love everyone I come into contact with as much as they love me. ...[Read more]
Reflecting on my trip to Peru with Joni and Friends to volunteer for a Family Retreat for families touched by disability, I am once again amazed at the way we saw God move among us, answering prayers, changing hearts, providing all that we could ever ask for and more. This is something that never seems to grow old, never loses the incredible impact that it has on my life each time I am able to participate in a Joni and Friends Family Retreat. Our time began with an Architects Conference at the University in Lima. About 40 students gathered to listen to local speakers as well as those ...[Read more]
Excerpt from Abby's story on iamviable. The doctor performing the routine ultra sound during my fifth pregnancy 7 years ago, was quietly studying the screen while I lay there watching his face and my husband sat eagerly waiting. Finally he said, “Do you want to know the sex?” to which we said, “Yes.” He replied,”It’s a girl.” We smiled and made comments about how our other children would react to the news. Then, quietly, he stood up and said, “I’ll be right back.” As we sat there for what seemed like forever, my husband said, “He was sure studying her intently. I wonder why he ...[Read more]